It’s a Christmas miracle! 😉

I thought this was c/justguysbeingdudes (or something like that) but I’m not sure it exists here. That was a great sub.

E: it does it exist! Dead but it doesn’t need to stay that way. I’ll cross post: !justguysbeingdudes@lemmy.world

I was disappointed too. I’ve never liked weed - the smell, the fuss, the mess, the taste. Blugh. I’d hoped oils would be all I needed but there’s no denying that dry herb vaping is more effective for my symptoms. The private pharmacy is going to start offering gummies as an alternative to herb, maybe that will work for me? Fingers crossed!

I didn’t want to say it if it wasn’t already on your radar, but I have PoTS and know a number of people with jejunostomy feeding tubes due to their gastroparesis. I even know a girl on parenteral nutrition. I don’t think I’ve ever met anyone with nausea as their main symptom though so I didn’t think of PoTS until you mentioned you’d researched it.

I love the acknowledgment that it’s not your body - you sound like a loving, supportive partner 🙂 Sometimes the “answer” seems so simple when you’re not the patient but when you’re chronically ill, you’ve already lost so much control over your body… having to take a drug you don’t want to feels like a step too far. It’s hard to explain and I’m not doing a very good job!

THC is not remotely in the same category of awfulness as a feeding tube so I’m glad she’ll probably try that first. And you don’t need to get high high to feel the anti-nausea/pro-appetite benefits - I use less than 0.25gm a day, maybe even half that and it does the trick just fine. Wishing your wife better soon!

I think I did that thing when you start a conversation in your head and then your comment posted mid-thought has no context, iykwim?! What I was thinking was: Feeling nauseated can reduce your appetite, as can repeated vomiting and the anxiety associated with it. People with chronic nausea tend not to want to eat, and not eating (or vomiting what you eat) is far more medically problematic than experiencing nausea. Hence, stimulating appetite as well as suppressing nausea is what makes medical cannabis so useful for cancer patients. But OPs wife isn’t going to see the anti nausea/increased appetite side effects from CBD alone. THC is the more important cannabinoid, and if she’s no longer pregnant/breast feeding she shouldn’t have a problem getting it prescribed- even in the UK. But it will be a private prescription here which is expensive af.

Both CDB and THC reduce nausea.

I’ve been prescribed medical cannabis for over a year now and neither CBD or THC oil do anything for my appetite. Vaping dry herb does though, even the low THC stuff. Maybe I’m weird though!

CBD oil does wonders for my arthritis, depression and anxiety though. And I slept for over 6 hours for the first time in 2 years when I started THC oil.

I’m a really big reader and have had 4 or 5 kindles now. My latest is the oasis and it was a considerable payout for me but I absolutely love it. I rarely pay for books, but kindles have a send-to-kindle function so you can download books from anywhere in any of the main formats and just email it to your kindle.

E-reader screens can seem really basic to the uninitiated but the paper white/oasis is just like reading from a book imo. Except you can read it in the dark too.

I feel you. This is the second winter we’ve only been able to heat one room to at least 18C, and that’s not warm enough for my disabled ass. My electric throw blanket is on 24/7 though and is incredibly efficient - it costs less than 25p a day. I would highly recommend one if you can manage the upfront cost. Also wrist warmers are highly underrated imo - cheap, you can knit/crochet them yourself, your fingers are still free for touch screens and they seem to keep me warmer than just a hat alone. Wishing you more comfortable times ahead, friend.

C/foundsatan

I’ve had 6 covid vaccinations and I’m still not protected. It’s not a case of “having the chance to get sufficiently vaccinated” if the vaccines don’t work on your immunosuppressed body, or if you can’t have the vaccine at all.

It’s unbelievably selfish to go out when you know you have covid. How hard is it to stay home for 5 days or so when you test positive ffs?! The fact that you don’t think staying home for a few days is “justified” when you literally risk killing someone vulnerable by not isolating is frankly shameful.

I was a little confused by the smile too, assuming she was no older than 30. Losing 6 years of your youth seems harder than 6 years in your 50s. Although it depends on the conditions she’s kept in.

If ever there was a good a reason 🫥

That’s a really good point. Thanks for the answer!

Good for you! My grandad had some rare blood type that was good for newborn babies (I’m a bit hazy on the details, he’s long dead now) and he gave blood as often as he could as soon as he found out. My mum told me he was a superhero who saved poorly babies when I was a kid and I believed her wholeheartedly!

If someone donates a kidney to a stranger and later on something happens and they need a kidney transplant themselves, do they get a bump up the waiting list? I can see an argument for either side.

Not a direct answer, but if you’d like to do something now to help someone while you’re still alive (and you’re under 30) you could sign up for bone marrow donation. And of course, give blood as often as you can. Regular blood donors are straight up angels.

I could pay for my prescription, that would make my life immediately better. Pretty depressing state of affairs tbh!

I just finished the Eddie Flynn series by Steve Cavanagh and would highly recommend it for anyone looking for an easy but captivating read. It’s kinda like watching a decent Hollywood action thriller. You have to suspend belief for a large part but it’s kinda fun and the characters are likeable.

This isn’t a spoiler, it’s on the blurb, but Eddie Flynn is a con man turned lawyer and I really enjoy antihero protagonists, particularly in the crime/thriller genre. If anyone has any suggestions, let me know!

Thank you, I appreciate that!